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Time to Talk Next Steps Co-Production Evaluation: Key Learning
Time to Talk Next Steps Co-Production Evaluation: Key Learning
Time to Talk Next Steps (TtTNS) has been a three-year (2021 – 2024) rights-based support programme for young people with additional needs aged 16 – 25 in England. As part of the final stages of the programme, NDTi are sharing the learning and reflections on co-producing the programme’s evaluation.
Authentistic: Co-Production with Autistic Adults
Authentistic: Co-Production with Autistic Adults
The Authentistic Research collective came together to tackle both of these issues as they wanted to investigate how psychological therapies can be adapted for autistic people, whilst at the same time exploring the process of co-production. The team compromised autistic and non-autistic members with diverse experiences in psychology, neuroscience, media and mental health, and were recruited via word of mouth and local groups. Their collaboration was co-produced from the beginning, giving the group the safety and freedom to be their ‘authentic’ selves.
Hearing Birdsong: Raising awareness of hearing loss in under-represented groups
Hearing Birdsong: Raising awareness of hearing loss in under-represented groups
The project began with questions around how to improve communication between people with hearing loss and health/social care professionals in North West London. The steering group, with people with hearing loss met regularly to co-design the workshop, so that it was accessible to people with hearing loss. This included having a hearing loop, a palantypist, sound system and rooms with good acoustics. This workshop brought together people with hearing loss, researchers, healthcare professionals and designers to develop novel research ideas
Black and Minoritised Women’s Voices in Maternity Care
Black and Minoritised Women’s Voices in Maternity Care
Maternity Voices Matter are trained maternity service users using a peer-led approach to community research to include the voices of families in co-producing and improving maternity services. Their aims are to listen to service users, give feedback to health professionals, and ensure that service users’ experiences are at the heart of service provision. They worked with NHS partners and a bilingual family support service at Manor Gardens Community Centre to co-produce a participatory research project into black and minoritised and ‘seldom-heard’ women’s experiences of maternity care.
Expanding co-production and growing capabilities through development of a Co-producer Associates Programme
Expanding co-production and growing capabilities through development of a Co-producer Associates Programme
Since we launched as Co-Production Collective in October 2020, our community has gone from strength to strength, supporting more and more organisations to co-produce. Members of our community are involved in this work on an ad-hoc basis as paid co-producers, but as demand has grown, so has the need to build this capacity in a more sustainable way. We decided to test out the approach of creating our own version of an ‘Associate model’, recruiting a group of people from our community to take a bigger and more ongoing role leading and supporting projects.
Co-producing innovation and improved access to hearing checks with autistic children and young people, and/or children and young people with a learning disability
Co-producing innovation and improved access to hearing checks with autistic children and young people, and/or children and young people with a learning disability
Autistic children and young people, and/or children and young people with a learning disability don’t always have access to hearing checks, or the checks are not appropriate to meet their needs. Since April 2021 we have been working with NHS England to provide co-production support for this project to gather views and generate ideas about how to develop more acceptable hearing checks for children and young people with a learning disability and/or who are autistic. We have also supported pilot projects in residential special schools to co-produce a new approach to hearing checks to test ‘what works.’
Handling Complexity in Evidence from systematic reviews and meta-analyses of Public Health Interventions (CEPHI project)
Handling Complexity in Evidence from systematic reviews and meta-analyses of Public Health Interventions (CEPHI project)
This project aimed to investigate how to make research evidence more useful for local decision-making by developing and testing four new methods to understand how evidence relating to child health from one setting might transfer to another setting. It was funded by the National Institute of Health & Care Research (NIHR) and led by the Evidence for Policy and Practice Information and Co-ordinating Centre, EPPI-Centre, at University College London (UCL) in partnership with Co-Production Collective.
World Cafés as a participatory approach to understanding research agendas in primary care with underserved communities: reflections, challenges and lessons learned
World Cafés as a participatory approach to understanding research agendas in primary care with underserved communities: reflections, challenges and lessons learned
People from minoritised ethnic groups can have difficulty getting health care. They may also be left out of health research. There is a need to include a more diverse group of people in health research. World Cafés are an accessible way to listen to people by getting them to talk to each other about different questions and topics.
Narrative Matters: Hidden LIVE – Adam's story – a mental health theatre production as an example of participatory principles and practices
Narrative Matters: Hidden LIVE – Adam's story – a mental health theatre production as an example of participatory principles and practices
Research ethics when working in partnership with people outside of the University system: A project report
Research ethics when working in partnership with people outside of the University system: A project report
This document represents the outcome of over 50 conversations with internal and external experts, including public contributors, lay editors, public engagement/involvement managers, researchers at all stages of their career, as well as research ethics committees. This report is a snapshot of the experiences of people working in research and involvement.
A Meeting of Minds: How co-production benefits people, professionals and organisations
A Meeting of Minds: How co-production benefits people, professionals and organisations
Report focusing on the practice of and learning about co-production, as well as the benefits for people, professionals and organisations. It shares ideas, examples, and inspiration from some of the 58 funded partnerships.
That Co-production Podcast by Research Design Service South East (RDS SE)
That Co-production Podcast by Research Design Service South East (RDS SE)
Research Design Service South East (RDS SE), in partnership with the National Institute for Health and Care Research (NIHR) Centre for Engagement and Dissemination, have launched a podcast series: ‘That Co-production Podcast!’ The intention is to increase the accessibility of discussion, debate and issues related to co-production.
The Case For Co-production Report
The Case For Co-production Report
These innovative examples show the difference that can be made by fully involving patients, service users and local communities in the design and delivery of services, making the case for co-producing health and social services with the people they serve: No Decision About Me Without Me.
Craft metrics to value co-production
Craft metrics to value co-production
Article assessing whether research is relevant to society, arguing that to see more co-production, we need to revise the dominant metrics accordingly. In essence, metrics to assess co-production must themselves be co-produced.
Why should urbanists care about co-production? Sheffield Urbanism Lecture Series
Why should urbanists care about co-production? Sheffield Urbanism Lecture Series
Video recording of Co-production & the Future of Urban Epistemics, the third Sheffield Urbanism Lecture Series. The Sheffield Urbanism Lecture series is an initiative of the Urban Institute to stimulate dialogue, discussion and understanding of processes of urbanization and urban life.
Impact in Qualitative Research: A reflection on using co-production approaches in mental health research
Impact in Qualitative Research: A reflection on using co-production approaches in mental health research
In this blog, a mixed-methods researcher who specialises in women’s mental health reflects on the process of doing this study and how the co-production approach resulted in a richer and more impactful study.
Care Homes - The Art of the Irresistible
Care Homes - The Art of the Irresistible
Nine vidoes from recordings from an event in Exeter – stories and examples of co-production.
Granby Four Streets Community Land Trust
Granby Four Streets Community Land Trust
Website of a Community Land Trust set up by a community. A Community Land Trust (CLT) is a not for profit community-based organisation run by volunteers that delivers housing and other community facilities at permanently affordable levels for local people. There are a number of benefits to setting up and running a CLT. Usually, the stimulus is a desire to create affordable homes that are available to local people who cannot afford open market housing.
Atmos Totnes: A Community-Led Project
Atmos Totnes: A Community-Led Project
Website of a Community Development in Scotland led by community. Atmos is a project that is being led by the Totnes Community Development Society. TCDS is not for profit company based in Totnes, Devon, that seeks to support the community in obtaining land, managing and imaginatively developing it.
Health as a Social Movement: seminar series write-up
Health as a Social Movement: seminar series write-up
This summary outlines the key findings from seminars across the country, getting up close to how this change is happening on the ground.
Participatory Budgeting
Participatory Budgeting
Description of participatory budgeting with case studies. It is a form of citizen participation in which citizens are involved in the process of deciding how public money is spent. Local people are often given a role in the scrutiny and monitoring of the process following the allocation of budgets.
Ethical challenges of co-production: Imagine project
Ethical challenges of co-production: Imagine project
This programme is a large-scale collaborative ethnographic study which explores records and representations of community engagement, using the research to imagine how communities might be different and experiment with different forms of community-building.
Co-production of Research: Special Issue by Nature
Co-production of Research: Special Issue by Nature
This special issue of Nature looks at the promise and the pitfalls of research coproduction for the societies, stakeholders and scientists now working shoulder to shoulder.
Ideas Hub by the Ideas Alliance
Ideas Hub by the Ideas Alliance
Great ideas and inspiring stories about communities, collaboration and co-production.
NIHR Clinical Research Network Research Ready Communities programme: Full evaluation report
NIHR Clinical Research Network Research Ready Communities programme: Full evaluation report
During 2021-2022, the NIHR Clinical Research Network piloted a community engagement model in three local areas across England. The aim of the programme was to understand how the Clinical Research Network could build better relationships with communities that are currently under-served by health and care research, and increase their access to health and care research opportunities. This document provides a full evaluation report of the pilot programme activities, the pilot’s impact, and the important lessons learned.
NIHR Clinical Research Network Research Ready Communities programme: Executive Summary
NIHR Clinical Research Network Research Ready Communities programme: Executive Summary
During 2021-2022, the NIHR Clinical Research Network piloted a community engagement model in three local areas across England. The aim of the programme was to understand how the Clinical Research Network could build better relationships with communities that are currently under-served by health and care research, and increase their access to health and care research opportunities. This document provides a summary of the pilot programme activities, and gives an overview of the pilot’s impact, and the important lessons learned.
The SISCODE Project - Final video
The SISCODE Project - Final video
A video sharing what the SISCODE Project Europe was all about. Also see 'SISCODE Project: Resources' in this library for further information and resources.
COVID-19 and Co-production in Health and Social Care Research, Policy, and Practice Volume 2: Co-production Methods and Working Together at a Distance
COVID-19 and Co-production in Health and Social Care Research, Policy, and Practice Volume 2: Co-production Methods and Working Together at a Distance
This two-volume set of Rapid Responses explores the urgent need to put co-production and participatory approaches at the heart of responses to the pandemic and demonstrates how policymakers, health and social care practitioners, patients, service users, carers and public contributors can make this happen. The second volume focuses on methods and means of co-producing during a pandemic. It explores a variety of case studies from across the global North and South and addresses the practical considerations of co-producing knowledge both now - at a distance - and in the future when the pandemic is over.
COVID-19 and Co-production in Health and Social Care Research, Policy, and Practice Volume 1: The Challenges and Necessity of Co-production
COVID-19 and Co-production in Health and Social Care Research, Policy, and Practice Volume 1: The Challenges and Necessity of Co-production
This two-volume set of Rapid Responses explores the urgent need to put co-production and participatory approaches at the heart of responses to the pandemic and demonstrates how policymakers, health and social care practitioners, patients, service users, carers and public contributors can make this happen. The first volume investigates how, at the outset of the pandemic, the limits of existing structures severely undermined the potential of co-production. It also gives voice to a diversity of marginalised communities to illustrate how they have been affected and to demonstrate why co-produced responses are so important both now during this pandemic and in the future.
Examples of co-production: Scottish Co-production Network
Examples of co-production: Scottish Co-production Network
A collection of examples of co-production and resources from a variety of sources.
Seeing is believing: co-production case studies from Wales
Seeing is believing: co-production case studies from Wales
This catalogue provides a range of case studies which demonstrate co-production in action across the public sector in Wales, along with resources and signposting to other information on co-production, from the UK and internationally. If you don't have one already you will need to sign up for a login with Social Care Institute of Excellence (SCIE)
Good Practice in Service User Involvement: From the voluntary sector working in criminal justice
Good Practice in Service User Involvement: From the voluntary sector working in criminal justice
This guide showcases six current examples of best practice in service user involvement from the voluntary sector working in criminal justice. It aims that you will be able to learn from these examples and put this good practice into action in your own organisation or context.
The National Ageing Better Co-production Channel
The National Ageing Better Co-production Channel
A curated selection of videos - case studies and advice and guidance on how to go about co-production